Giving Back

Let’s Make ALS Bearable

ALS Bearable Poster

Despite the loss of my independence, mobility and now my voice, I am more determined than ever to make a difference in the ALS community. I decided to use my eye-gaze controlled computer to help others. I have begun a donation campaign to raise money to bring a comforting “hug” to children affected by a loved one with ALS. It is my hope that this worthy cause will go beyond the Green Bay, Wisconsin area to help children throughout Wisconsin and across the country. My fundraiser has already gone beyond borders. Besides Wisconsin, kids from Indiana, Alabama and even Ontario Canada have gotten a “Hug”.

Please consider donating, even if it’s only a couple of dollars. If you can’t contribute, I would appreciate your support by sharing my message.

There are actually 3 ways to donate.

By check, mail to:
Lets Make ALS Bearable”
Denmark State Bank
1740 Scheuring Road
De Pere, WI 54115

PayPal to my email:

There is also a Go fund me page:

If anyone knows of a child affected by ALS who would like to get a “hug”, please email me:

Thanks in advance for your time and consideration, a huge thank you to everyone who has already helped make my dream to give some love to the ALS community a success!

Inspiration · Noteworthy Quotes

In the Grand Scheme, Love What Matters

We must have a theme, a goal, a purpose in our lives. If you don’t know where you’re aiming, you don’t have a goal. My goal is to live my life in such a way that when I die, someone can say, she cared.

~ Mary Kay Ash ~


I love fireworks. So much potential for third degree burns.



4th of July is by far my favorite holiday. Fireworks, Family, Friends and Fun. Bikinis, Boats, Beer and BBQs. No expectations, no pressure. I am so lucky to have experienced some of the most epic 4th of July’s ever! 

This 4th of July I’m sitting on my couch listening to the fireworks and reminiscing about all the wonderful ones I have been apart of. The photos above show the last 3 … ALS 4th of July’s. 

The first one was July 2015. I had officially stopped working and moved onto the boat in San Diego. We were still full of hope and having fun. (Seriously look how tan we were!) We knew what ALS was and we knew we had a timeline but we still didn’t “get it”. We had spent the day fishing and enjoying family and friends and then cruised the bay for one of the most mind…

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Change Is Inevitable

“Change isn’t easy… changing the way you live means changing what you believe about life. That’s hard… When we make our own misery, we sometimes cling to it even when we want so bad to change because the misery is something we know. The misery is comfortable.” – Dean Koontz

A lot has happened in the past year. Good and bad. I laughed, cried, got my heart broken. I thought things couldn’t get worse, then they did. Then I thought things couldn’t get any better, and… lo and behold, they did.

And I changed. As a person. I began to see myself in a different light. I began to see the world around me differently.

I realized how powerful my thoughts really were. I used to be this negative person, a pessimist. I used to think that I wasn’t much, that the world around me wasn’t much. I used to…

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Modern Love

Have Hope, Keep Faith…

In my lifetime the world has changed rapidly. The world is evolving faster every day. And every aspect of our lives changes according to this new world, according to our vision of the world.

Love, or the way we perceive it, has changed as well. Some say that we have grown to enjoy being alone, that we enjoy the idea that technology can imitate real interaction. We text, we e-mail, we skype, we like, we comment, and, yet, we often find ourselves asking, “What is love?” or, more importantly, “What is love supposed to feel like?”

Sometimes we tend to analyze stuff for longer than necessary. Most times we like to believe that life was better, funnier in a distant past we will never be able to go back to. The place and time we live in is never as wonderful as those million worlds we imagine or dream about.

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Inner Peace

Find your paradise with inner peace.

what i have come to realize is that life is not at all what it seems

people can take you, shake you and listen to your screams

but in the end, you must delve deep within yourself

no distractions, no fear, just an exploration far from everything else

close your eyes, take a breath and seep into your seat

i want you to do this when you feel lost, and if need be, repeat

think of all of the things you are grateful for

feel a smile form on your lips, feel your heart soar

feel your way around the deepest parts of your soul

find the warmth inside yourself when you’re surrounded by a world so cold

know that despite the external chaos, there is a calm sea of peace and light

in this place, you do not need to try so hard…you do not need to fight


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Inspiration · Noteworthy Quotes

Spring Born


How I Live Now: Life With ALS


Warmth tempts my berry tipped toes

to the opening of my den.

I crouch by new grass blades

sharp with the bitter scent of promise.

I am spring born.

What was my life before this long darkness?

Before this crescent edge of sun?

Do the trees stand exactly as they used to,

cutting out room for my shadow

in their own greater  shade?

Does the river carve out the spots where I used to stand

in hopes that my feet will

nestle in its water again?

I take one step forward

into the–

I am spring born.

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Take It Easy

Stress & Anxiety, Winning the Battle

I have been trying to reduce the stress and anxiety from my everyday challenges, one of the biggest being my wheelchair. Although I have a fairly new plain jane, it is very uncomfortable. I avoided shopping trips and outings because of the stress and misery. I almost slid out of it many times so it was also becoming increasingly unsafe. At a recent appointment, I got so stressed from the discomfort I felt like I was going to pass out. I have a brand new power chair but no way to transport it. I finally found this gem, don’t even have to transfer to the uncomfortable infusion chair anymore. Score! Yesterday’s shopping trip was actually enjoyable. I got it from Walgreens website, able to return to store if unhappy, no restocking fee. I snagged a 20% discount from Retail Me Not, good till end of year. Comfortable and stress free.. Priceless.