On January 28 of this year I was diagnosed with “probable” limb ALS (Lou Gehrig’s disease, or a disorder called amyotrophic lateral sclerosis). Although my life is forever changed, I am convinced there are many ingredients paramount to overcoming the trials of any devastating disease. I truly believe that a positive attitude is critical in conquering the adversity of any disability. I have spent hundreds of hours researching ALS and have a wealth of information on dealing with this horrible disease, both physically and emotionally. I have found an abundance of self-help gadgets and even devised a few of my own. Carolyn Younk, Care Services Coordinator, ALS Association, Wisconsin Chapter, has suggested I help inspire others in despair. Yes, I have my own mountains to climb, but I can beat that mountain and help others do it too. I have faith that we are given challenges for a reason, that there must be a silver lining in all of this madness. I want to share my journey and personal army of ideas and discoveries with other people and families that don’t have my strength, looking for someone they can identify with. So, here I go, ready to chronicle my research and thoughts. The way I see it, I can melt into a puddle of goo or I can take the reins and ride this bronco. Giddyup (gĭd′ē-ŭp′).
My New Normal