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Category Archives: Cyber Links

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My Christmas Wish List

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I know everyone gets so busy around the holidays but I am sending out another plea, take a minute and please call the number in the link below. It could make a huge difference in so many lives. On a personal note, this could mean the difference between me completely losing the use of my arms and legs and staying functional with what little I have left. Many have asked me if there’s anything they can do for me, how about a couple minutes of your time…

Please share with your friends.

In the words of my dear friend Dolly Boehm Malinski, who is now an angel with God, “Love to all”

Phone a Friend for a Lifeline

 

 

 

 
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Mother With ALS Paints Again

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This is an incredible story.

Her determination is truly inspirational.

PCEye Amazing Technology
 

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In Search of Supplements

 

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It is so easy to just spin out of control emotionally and think you are in a race/fight for your life when given a diagnosis like ALS. Luckily, we have this wonderful thing called the internet, but YOU need to be your own best healthcare advocate. Everywhere you look, someone has some revolutionary pill that will cure you and change your life forever. That, unfortunately doesn’t exist, so I have started my own personal quest for all the supplement knowledge I can digest. I try to browse only government and university websites such as als.net, alsa.orgnih.gov and mayoclinic.org  for my research. I don’t look to supplements that are not FDA approved, proven to be effective or beneficial, and only take those approved by my healthcare team. Until supplements are submitted to a clinical trial, they cannot be recommended as beneficial, as there is no clinically proven evidence for benefit. This article has a lot of good information. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2631353/

 

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