Inspiration · Noteworthy Quotes

Spring Born

Beautiful

How I Live Now: Life With ALS

 

Warmth tempts my berry tipped toes

to the opening of my den.

I crouch by new grass blades

sharp with the bitter scent of promise.

I am spring born.

What was my life before this long darkness?

Before this crescent edge of sun?

Do the trees stand exactly as they used to,

cutting out room for my shadow

in their own greater  shade?

Does the river carve out the spots where I used to stand

in hopes that my feet will

nestle in its water again?

I take one step forward

into the–

I am spring born.

View original post

Advertisements
Inspiration · Science & Medicine

Getting Back My Voice?

This is really exciting news! I have lots of voice recordings from my Digital Media classes.

How I Live Now: Life With ALS

3

2

This news is both moving and a profound reason for hope! When I was diagnosed three years ago, voice banking would have taken eight hours, and I simply didn’t have the strength – or money – for such an endeavor. As you will see in the video,141136 this company was able to recreate this man’s voice with only three hours of recording. Maybe one day, my half hour of recording will be enough to get my voice back!

“I’m shouting hard… This is the start!”

View original post

Inspiration

Share Your Journey

Sharing your personal experiences can truly make a difference in someone else’s world, it certainly gives a sense of meaning to my life. Someday this pain will be useful…
Inspiration · Noteworthy Quotes

Write Your Own Life Story

   Bad things do happen; how I respond to them defines my character and the quality of my life. I can choose to sit in perpetual sadness, immobilized by the gravity of my loss, or I can choose to rise from the pain and treasure the most precious gift I have – life itself.”

~ Walter Anderson

Inspiration · Science & Medicine

My Christmas Wish List

img_0004

I know everyone gets so busy around the holidays but I am sending out another plea, take a minute and please call the number in the link below. It could make a huge difference in so many lives. On a personal note, this could mean the difference between me completely losing the use of my arms and legs and staying functional with what little I have left. Many have asked me if there’s anything they can do for me, how about a couple minutes of your time…

Please share with your friends.

In the words of my dear friend Dolly Boehm Malinski, who is now an angel with God, “Love to all”

Phone a Friend for a Lifeline

 

 

 

Inspiration

Never Losing Hope, an inspirational story by Ailsa Malcolm-Hutton

Ailsa has such a positive attitude, I see myself in so much of her story. I have a goal to follow her example, accepting the hand life has dealt me with grace and dignity.

It is pretty easy to get in myself into a pitty pot as I am faced with new and different challenges daily. One thing about ALS, every day you wake up is a surprise, some days good, some bad. I try to find one blessing in every day and as I look around me it’s not hard.

I also miss the simple things like cleaning, cooking, driving, singing and dancing. I especially miss being able to get up and go anywhere, anytime I want, saddened as it further adds to the loss of my independence. I try to focus on the things I can do, sharing stories like Ailsa’s and never losing hope. I too am hanging on, waiting for that elusive cure.

Thanks Ailsa, for your inspiration.

http://alsworldwide.org/perspectives/post/never-losing-hope