Inspiration · Science & Medicine

Getting Back My Voice?

This is really exciting news! I have lots of voice recordings from my Digital Media classes.

How I Live Now: Life With ALS

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This news is both moving and a profound reason for hope! When I was diagnosed three years ago, voice banking would have taken eight hours, and I simply didn’t have the strength – or money – for such an endeavor. As you will see in the video,141136 this company was able to recreate this man’s voice with only three hours of recording. Maybe one day, my half hour of recording will be enough to get my voice back!

“I’m shouting hard… This is the start!”

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Inspiration · Science & Medicine

My Christmas Wish List

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I know everyone gets so busy around the holidays but I am sending out another plea, take a minute and please call the number in the link below. It could make a huge difference in so many lives. On a personal note, this could mean the difference between me completely losing the use of my arms and legs and staying functional with what little I have left. Many have asked me if there’s anything they can do for me, how about a couple minutes of your time…

Please share with your friends.

In the words of my dear friend Dolly Boehm Malinski, who is now an angel with God, “Love to all”

Phone a Friend for a Lifeline

 

 

 

Science & Medicine

In Search of Supplements

 

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It is so easy to just spin out of control emotionally and think you are in a race/fight for your life when given a diagnosis like ALS. Luckily, we have this wonderful thing called the internet, but YOU need to be your own best healthcare advocate. Everywhere you look, someone has some revolutionary pill that will cure you and change your life forever. That, unfortunately doesn’t exist, so I have started my own personal quest for all the supplement knowledge I can digest. I try to browse only government and university websites such as als.net, alsa.orgnih.gov and mayoclinic.org  for my research. I don’t look to supplements that are not FDA approved, proven to be effective or beneficial, and only take those approved by my healthcare team. Until supplements are submitted to a clinical trial, they cannot be recommended as beneficial, as there is no clinically proven evidence for benefit. This article has a lot of good information. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2631353/

Science & Medicine

Maple Syrup Protects Motor Neurons

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An after-school study by two teenagers in Canada found that maple syrup protects neurons and halts the development of amyotrophic lateral sclerosis (ALS) in an animal model of the disease. Not really a pancake fan but this is really encouraging news. https://alsnewstoday.com/2016/04/14/maple-syrup-protects-motor-neurons-in-als-model-using-worms/