Problem: Opening jars and bottles (especially small water bottles) can be a daunting task, not only for people suffering from motor neuron disease, but arthritis and just plain getting old! My hands just don’t have the strength and it can get pretty frustrating. I love to cook but there is not always someone here to help if I need it, and let’s face it, I already use my teeth for more things than I probably should! Solution: The EZ Off Jar Opener. It gives me independence and it will still work in a power outage! Pretty simple. It mounts under a cabinet, can’t even see it. You can use both hands and it works with very little effort. If you can turn the jar, it WILL open. Hey, it even opens fingernail polish!
This is an incredible story.
Her determination is truly inspirational.
PCEye Amazing Technology
As I started losing strength in my arms and hands, it was getting increasingly more difficult to use my big clunky hair dryer, so I ordered this little baby. When it came in the mail, I was concerned about it’s size and strength to dry my hair, but the Berta 1000 is awesome!! It dries my hair in less time than the monster 2.4 pound hair dryer I was using. It only weighs 10 ounces and has a nice long cord. It’s all about the little things that make my life easier. Plus, it just happens to come in my favorite color…Pink! LOVE IT!!!
I have learned two important lessons since being diagnosed with ALS; 1) You have to keep moving (stretching and exercise are mandatory) 2) More is not necessarily better (don’t wear yourself out, it doesn’t help). This was one of my first additions to the 2X a day stretch regimen I do daily (this is non-negotiable for me). Stretching is vital as muscles get progressively weak and fatigued. The calf muscle is one that can get very tight and makes already difficult walking an even bigger challenge. I used the calf stretch wedge in PT and my husband Randy, a very talented woodworker, built me one to use at home. We adjusted the plans a bit from what I found online. You can get the non-skid tape at Menards or Amazon. I actually ordered only a few
and Amazon sent me a big roll by mistake. I will send strips (as long as they last) to anyone who has a need, just message me where to send. Randy will also build a wedge for anyone, $20 plus shipping cost or we can email plans (contact us through http://planitwoodworks.com/). Anyone who has tight calf muscles will benefit from the calf stretching wedge no matter what the cause. Good article about tight calf muscles, http://bit.ly/1YMORzd. I stretch both legs at a time for about 1-2 minutes. When it comes to stretching, more is definitely better, and it feels awesome!
It is so easy to just spin out of control emotionally and think you are in a race/fight for your life when given a diagnosis like ALS. Luckily, we have this wonderful thing called the internet, but YOU need to be your own best healthcare advocate. Everywhere you look, someone has some revolutionary pill that will cure you and change your life forever. That, unfortunately doesn’t exist, so I have started my own personal quest for all the supplement knowledge I can digest. I try to browse only government and university websites such as als.net, alsa.org, nih.gov and mayoclinic.org for my research. I don’t look to supplements that are not FDA approved, proven to be effective or beneficial, and only take those approved by my healthcare team. Until supplements are submitted to a clinical trial, they cannot be recommended as beneficial, as there is no clinically proven evidence for benefit. This article has a lot of good information. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2631353/
An after-school study by two teenagers in Canada found that maple syrup protects neurons and halts the development of amyotrophic lateral sclerosis (ALS) in an animal model of the disease. Not really a pancake fan but this is really encouraging news. https://alsnewstoday.com/2016/04/14/maple-syrup-protects-motor-neurons-in-als-model-using-worms/