RSS
Image

Mother With ALS Paints Again

eye
This is an incredible story.

Her determination is truly inspirational.

PCEye Amazing Technology
Advertisements
 

Tags: , , , , , , ,

Image

Have a Great (hair) Day!

Baby BertaAs I started losing strength in my arms and hands, it was getting increasingly more difficult to use my big clunky hair dryer, so I ordered this little baby. When it came in the mail, I was concerned about it’s size and strength to dry my hair, but the Berta 1000 is awesome!! It dries my hair in less time than the monster 2.4 pound hair dryer I was using. It only weighs 10 ounces and has a nice long cord. It’s all about the little things that make my life easier. Plus, it just happens to come in my favorite color…Pink! LOVE IT!!!

http://www.amazon.com/gp/product/B014VV3C6C?ie=UTF8&camp=1789&creativeASIN=B014VV3C6C&linkCode=xm2&tag=digpicbykrica-20

 
 

Tags: , , , , , , , , , , ,

Image

You Rest, You Rust

Mr Wedge
I have learned two important lessons since being diagnosed with ALS; 1) You have to keep moving (stretching and exercise are mandatory) 2) More is not necessarily better (don’t wear yourself out, it doesn’t help). This was one of my first additions to the 2X a day stretch regimen I do daily (this is non-negotiable for me). Stretching is vital as muscles get progressively weak and fatigued. The calf muscle is one that can get very tight and makes already difficult walking an even bigger challenge. I used the calf stretch wedge in PT and my husband Randy, a very talented woodworker, built me one to use at home. We adjusted the plans a bit from what I found online. You can get the non-skid tape at Menards or Amazon. I actually ordered only a few

http://www.amazon.com/gp/product/B01BUHX3QY?ie=UTF8&camp=1789&creativeASIN=B01BUHX3QY&linkCode=xm2&tag=digpicbykrica-20

and Amazon sent me a big roll by mistake. I will send strips (as long as they last) to anyone who has a need, just message me where to send. Randy will also build a wedge for anyone, $20 plus shipping cost or we can email plans (contact us through http://planitwoodworks.com/). Anyone who has tight calf muscles will benefit from the calf stretching wedge no matter what the cause. Good article about tight calf muscles, http://bit.ly/1YMORzd. I stretch both legs at a time for about 1-2 minutes. When it comes to  stretching, more is definitely better, and it feels awesome!

 

Tags: , , , , , , , , , , , , , , ,

Image

Smile :)

playschool-sunshine-1530258-639x617   “Your smile will give you a positive countenance that will make people feel comfortable around you.”
~ Les Brown 
 
Leave a comment

Posted by on April 20, 2016 in Everything Else

 
Image

In Search of Supplements

 

pills-tablets-2-1524560-1279x1540

It is so easy to just spin out of control emotionally and think you are in a race/fight for your life when given a diagnosis like ALS. Luckily, we have this wonderful thing called the internet, but YOU need to be your own best healthcare advocate. Everywhere you look, someone has some revolutionary pill that will cure you and change your life forever. That, unfortunately doesn’t exist, so I have started my own personal quest for all the supplement knowledge I can digest. I try to browse only government and university websites such as als.net, alsa.orgnih.gov and mayoclinic.org  for my research. I don’t look to supplements that are not FDA approved, proven to be effective or beneficial, and only take those approved by my healthcare team. Until supplements are submitted to a clinical trial, they cannot be recommended as beneficial, as there is no clinically proven evidence for benefit. This article has a lot of good information. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2631353/

 

Tags: , , , ,

Maple Syrup Protects Motor Neurons

Maple-Syrup2

An after-school study by two teenagers in Canada found that maple syrup protects neurons and halts the development of amyotrophic lateral sclerosis (ALS) in an animal model of the disease. Not really a pancake fan but this is really encouraging news. https://alsnewstoday.com/2016/04/14/maple-syrup-protects-motor-neurons-in-als-model-using-worms/

 

Tags: , , , , , , , , ,

My New Normal

My New Normal

On January 28 of this year I was diagnosed with “probable” limb ALS (Lou Gehrig’s disease, or a disorder called amyotrophic lateral sclerosis). Although my life is forever changed, I am convinced there are many ingredients paramount to overcoming the trials of any devastating disease. I truly believe that a positive attitude is critical in conquering the adversity of any disability. I have spent hundreds of hours researching ALS and have a wealth of information on dealing with this horrible disease, both physically and emotionally. I have found an abundance of self-help gadgets and even devised a few of my own. Carolyn Younk, Care Services Coordinator, ALS Association, Wisconsin Chapter, has suggested I help inspire others in despair. Yes, I have my own mountains to climb, but I can beat that mountain and help others do it too. I have faith that we are given challenges for a reason, that there must be a silver lining in all of this madness. I want to share my journey and personal army of ideas and discoveries with other people and families that don’t have my strength, looking for someone they can identify with. So, here I go, ready to chronicle my research and thoughts. The way I see it, I can melt into a puddle of goo or I can take the reins and ride this bronco. Giddyup (gĭd′ē-ŭp′).

 
10 Comments

Posted by on April 17, 2016 in Inspiration

 

Tags: , , , , , , , ,

 
%d bloggers like this: