Take It Easy

Stress & Anxiety, Winning the Battle

I have been trying to reduce the stress and anxiety from my everyday challenges, one of the biggest being my wheelchair. Although I have a fairly new plain jane, it is very uncomfortable. I avoided shopping trips and outings because of the stress and misery. I almost slid out of it many times so it was also becoming increasingly unsafe. At a recent appointment, I got so stressed from the discomfort I felt like I was going to pass out. I have a brand new power chair but no way to transport it. I finally found this gem, don’t even have to transfer to the uncomfortable infusion chair anymore. Score! Yesterday’s shopping trip was actually enjoyable. I got it from Walgreens website, able to return to store if unhappy, no restocking fee. I snagged a 20% discount from Retail Me Not, good till end of year. Comfortable and stress free.. Priceless.
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Inspiration · Science & Medicine

Getting Back My Voice?

This is really exciting news! I have lots of voice recordings from my Digital Media classes.

How I Live Now: Life With ALS

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This news is both moving and a profound reason for hope! When I was diagnosed three years ago, voice banking would have taken eight hours, and I simply didn’t have the strength – or money – for such an endeavor. As you will see in the video,141136 this company was able to recreate this man’s voice with only three hours of recording. Maybe one day, my half hour of recording will be enough to get my voice back!

“I’m shouting hard… This is the start!”

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Inspiration

Share Your Journey

Sharing your personal experiences can truly make a difference in someone else’s world, it certainly gives a sense of meaning to my life. Someday this pain will be useful…
Inspiration · Noteworthy Quotes

Write Your Own Life Story

   Bad things do happen; how I respond to them defines my character and the quality of my life. I can choose to sit in perpetual sadness, immobilized by the gravity of my loss, or I can choose to rise from the pain and treasure the most precious gift I have – life itself.”

~ Walter Anderson

Inspiration · Science & Medicine

My Christmas Wish List

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I know everyone gets so busy around the holidays but I am sending out another plea, take a minute and please call the number in the link below. It could make a huge difference in so many lives. On a personal note, this could mean the difference between me completely losing the use of my arms and legs and staying functional with what little I have left. Many have asked me if there’s anything they can do for me, how about a couple minutes of your time…

Please share with your friends.

In the words of my dear friend Dolly Boehm Malinski, who is now an angel with God, “Love to all”

Phone a Friend for a Lifeline

 

 

 

Inspiration

Never Losing Hope, an inspirational story by Ailsa Malcolm-Hutton

Ailsa has such a positive attitude, I see myself in so much of her story. I have a goal to follow her example, accepting the hand life has dealt me with grace and dignity.

It is pretty easy to get in myself into a pitty pot as I am faced with new and different challenges daily. One thing about ALS, every day you wake up is a surprise, some days good, some bad. I try to find one blessing in every day and as I look around me it’s not hard.

I also miss the simple things like cleaning, cooking, driving, singing and dancing. I especially miss being able to get up and go anywhere, anytime I want, saddened as it further adds to the loss of my independence. I try to focus on the things I can do, sharing stories like Ailsa’s and never losing hope. I too am hanging on, waiting for that elusive cure.

Thanks Ailsa, for your inspiration.

http://alsworldwide.org/perspectives/post/never-losing-hope