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Never Losing Hope, an inspirational story by Ailsa Malcolm-Hutton

Never Losing Hope, an inspirational story by Ailsa Malcolm-Hutton

Ailsa has such a positive attitude, I see myself in so much of her story. I have a goal to follow her example, accepting the hand life has dealt me with grace and dignity.

It is pretty easy to get in myself into a pitty pot as I am faced with new and different challenges daily. One thing about ALS, every day you wake up is a surprise, some days good, some bad. I try to find one blessing in every day and as I look around me it’s not hard.

I also miss the simple things like cleaning, cooking, driving, singing and dancing. I especially miss being able to get up and go anywhere, anytime I want, saddened as it further adds to the loss of my independence. I try to focus on the things I can do, sharing stories like Ailsa’s and never losing hope. I too am hanging on, waiting for that elusive cure.

Thanks Ailsa, for your inspiration.

http://alsworldwide.org/perspectives/post/never-losing-hope

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Posted by on August 31, 2016 in Inspiration

 

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I Want to be Like Tim

I Want to be Like Tim

“Too busy to be afraid”…  Those words sparked my interest, Tim has ALS. He is truly an inspiration to anyone who is challenged with an incurable disease. As the fear of the unknown haunts my every waking hour, reading stories like Tim’s gives me renewed hope. Former Titans linebacker Tim Shaw is facing life with ALS

Check him out on Facebook https://www.facebook.com/TimShawOfficial/?fref=ts and Twitter https://twitter.com/TShawsTruth  he is one amazing individual. Even a tough football player like Tim, faced with the increasing difficulty of once simple tasks, has an unbelievably confident attitude that keeps him grounded, embracing the triumphs of even his smallest accomplishments. I want to be like Tim.

 
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Posted by on May 24, 2016 in Inspiration

 

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Problem Solved!

ez-off-jar-openerProblem: Opening jars and bottles (especially small water bottles) can be a daunting task, not only for people suffering from motor neuron disease, but arthritis and just plain getting old! My hands just don’t have the strength and it can get pretty frustrating. I love to cook but there is not always someone here to help if I need it, and let’s face it, I already use my teeth for more things than I probably should! Solution: The EZ Off Jar Opener. It gives me independence and it will still work in a power outage! Pretty simple. It mounts under a cabinet, can’t even see it. You can use both hands and it works with very little effort. If you can turn the jar, it WILL open. Hey, it even opens fingernail polish!

http://www.amazon.com/gp/product/B000X6K9J8?ie=UTF8&camp=1789&creativeASIN=B000X6K9J8&linkCode=xm2&tag=digpicbykrica-20

 

 

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Mother With ALS Paints Again

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This is an incredible story.

Her determination is truly inspirational.

PCEye Amazing Technology
 

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Have a Great (hair) Day!

Baby BertaAs I started losing strength in my arms and hands, it was getting increasingly more difficult to use my big clunky hair dryer, so I ordered this little baby. When it came in the mail, I was concerned about it’s size and strength to dry my hair, but the Berta 1000 is awesome!! It dries my hair in less time than the monster 2.4 pound hair dryer I was using. It only weighs 10 ounces and has a nice long cord. It’s all about the little things that make my life easier. Plus, it just happens to come in my favorite color…Pink! LOVE IT!!!

http://www.amazon.com/gp/product/B014VV3C6C?ie=UTF8&camp=1789&creativeASIN=B014VV3C6C&linkCode=xm2&tag=digpicbykrica-20

 
 

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My New Normal

My New Normal

On January 28 of this year I was diagnosed with “probable” limb ALS (Lou Gehrig’s disease, or a disorder called amyotrophic lateral sclerosis). Although my life is forever changed, I am convinced there are many ingredients paramount to overcoming the trials of any devastating disease. I truly believe that a positive attitude is critical in conquering the adversity of any disability. I have spent hundreds of hours researching ALS and have a wealth of information on dealing with this horrible disease, both physically and emotionally. I have found an abundance of self-help gadgets and even devised a few of my own. Carolyn Younk, Care Services Coordinator, ALS Association, Wisconsin Chapter, has suggested I help inspire others in despair. Yes, I have my own mountains to climb, but I can beat that mountain and help others do it too. I have faith that we are given challenges for a reason, that there must be a silver lining in all of this madness. I want to share my journey and personal army of ideas and discoveries with other people and families that don’t have my strength, looking for someone they can identify with. So, here I go, ready to chronicle my research and thoughts. The way I see it, I can melt into a puddle of goo or I can take the reins and ride this bronco. Giddyup (gĭd′ē-ŭp′).

 
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Posted by on April 17, 2016 in Inspiration

 

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